Reading and Resources
Websites
- American Academy of Pediatrics. Helpful Epilepsy Resources for Patients and Families. Last updated August 14, 2024. https://www.aap.org/en/patient-care/epilepsy/managing-pediatric-epilepsy/helpful-epilepsy-resources-for-patients-and-families/
- Centers for Disease Control and Prevention. Managing Epilepsy. May 15, 2024. https://www.cdc.gov/epilepsy/living-with/index.html
- DEE-P Connections. https://deepconnections.net/
- Epilepsy Foundation. Developmental and Epileptic Encephalopathy (DEE). Published March 1, 2021. https://www.epilepsy.com/what-is-epilepsy/syndromes/developmental-and-epileptic-encephalopathy
- National Association of Epilepsy Centers. Patient Resources. https://www.naec-epilepsy.org/for-patients/patient-resources/
- World Health Organization. Epilepsy: a public health imperative. Published June 13, 2019. https://www.who.int/publications/i/item/epilepsy-a-public-health-imperative
Articles and Further Reading
- Balestrini S, Guerrini R, Sisodiya SM. Rare and complex epilepsies from childhood to adulthood: requirements for separate management or scope for a lifespan holistic approach? Curr Neurol Neurosci Rep. 2021;21:65. doi:10.1007/s11910-021-01154-7
- Berg AT, Kaiser K, Dixon-Salazar T, et al. Seizure burden in severe early-life epilepsy: Perspectives from parents. Epilepsia Open. 2019;4:293-301. doi:10.1002/epi4.12319
- Bertocchi I, Cambiaghi M, Hasan MT. Advances toward precision therapeutics for developmental and epileptic encephalopathies. Front Neurosci. 2023;17:1140679. doi:10.3389/fnins.2023.1140679
- Raga S, Specchio N, Rheims S, Wilmshurst JM. Developmental and epileptic encephalopathies: recognition and approaches to care. Epileptic Disord. 2021;23:40-52. doi:10.1684/epd.2021.1244
- Sorin LM, Knupp KG, Berg AT. New-onset seizure survey of epilepsy centers in the United States. Epilepsy Behav. 2019;101(Pt A):106579. doi:10.1016/j.yebeh.2019.106579
- Specchio N, Curatolo P. Developmental and epileptic encephalopathies: what we do and do not know. Brain. 2021;144:32-43. doi:10.1093/brain/awaa371
All URLs accessed August 23, 2024
